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#RUN4ME

Please join us on Sept 14th for Action CIND’s first annual #Run4ME. The event is a chance to raise funds for Action CIND’s Myalgic Encephalomyelitis (ME) Research Fund. Come as a participant or a spectator to cheer on our runners and walkers on a 1K/5K walk/run at Woodland Trails Scout Camp, in Stouffville ON. Festivities start at 1pm. Our location is part of Oak Ridges Moraine and is a beautiful spot to spend an afternoon of fun.

Whether you are a runner, walker, volunteer, patient, health care worker or supporter we encourage you to join the event to say thanks to the runners for raising funds for ME Research. We also have great items for our silent auction and bring your children for fun and games after the runners have finished their race! More details on the silent auction will be made over the summer.

Register today as a participant or a guest by going to https://actioncind.crowdchange.co/8963 to find more details. It will help us to know how many people to expect.

If you cannot make the event but would like to donate, please send an etransfer to run4me@actioncind.org and follow it up with an email confirming your donation with your full name and address so we can issue a tax receipt. You can also use www.actioncind.org/donate just please email run4me@actioncind.org and give us your full name and address so we can generate a tax receipt for you.

If you have any questions, please email run4me@actioncind.org

We look forward to seeing all of you on Sept 14th at the 1st annual #Run4ME. It will be a great day full of fun activities and opportunities to help us raise funds for ME Research.

 

May 12th

2020 marks the 28th anniversary of May 12th International Awareness Day. As one of our education initiatives, we promote the day around the world and encourage people to participate in in the many activities that are planned. Additional information can be found on our website www.may12th.org.

Supporters

Join Action CIND as a supporter and receive additional benefits. The cost is $30 per year. Please complete this form and mail to our office. We are working on developing our benefit package. Currently we offer the following:

  • It is known that peer support can be very beneficial for individuals battling illness. Unfortunately for CIND patients, there are very few support groups available and many patients are not well enough to attend even if a group was available.  We are aware of an organization that provides an online self-help group. They are the CFIDS & Fibromyalgia Self Help Program (http://www.cfidsselfhelp.org/) . They have excellent programs you can take from home. They charge a nominal fee. To assist with the costs, Action CIND will make available to members in good standing, a bursary in the amount of $10 Canadian upon completion of one of their online programs.
  • Applying for CPP Disability and other coverages is a daunting task. Knowing what to do is a challenge. Our legal professionals have agreed to provide one pro-bono counselling session to any member in good standing that requires some support and direction. Often you can deal with the system on your own. Some do choose to hire professionals or legal aid due to the overwhelming nature of the task. Our lawyers will help you to understand the process so you can make informed choices.
  • For Ontario supporters, our Disability Consultant has experience reviewing legal bills for disability support cases for any evidence of double billing. This issue has recently been reported in the Toronto Star. Our consultant will review your initial contract and legal bills, providing the bill was issued less than 2 years ago. Should there be evidence of over billing, they will recommend a course of action.
  • Our Disability Consultant is a former lawyer and past chair of the Canada Pension Plan review tribunals for the greater Mississauga and Toronto area. She has considerable experience assisting clients successfully apply and obtain disability benefits.  As a Disability Consultant, she has offered to speak with Ontario supporters for 20 minutes free of charge, to understand your situation and assess your chances of getting accepted for these disability benefits. If you are interested in her services, she will offer a substantially discounted hourly rate to help guide you through the process of obtaining disability benefits. Certainly she can suggest things you can do to improve your chances of success.

Volunteer

Be part of our team! Volunteering allows you to directly participate in Action CIND program work. We are always looking for volunteers and can find you something that meets your needs. Please Contact US for more information.

Websites

The following list of websites are made available to help you find information about May 12th International Awareness Day, the illnesses or supporting organizations.

If you know of any items that should be added, please “Contact Us”.

Australia Australia

The Hummingbirds’ Foundation for M.E. (HFME) – www.hfme.org

Belgium Belgium

Belgium ME/CFS Association – www.me-cvs.be

R.E.D. Laboratories – www.redlabs.be

Canada Canada

Action CIND – www.actioncind.org

Association Québécoise de l’Encéphalomyélite Myalgique (AQEM) – www.aqem.org

Brockville M.E Association – www.brockvilleme-fm.ca

Environmental Health Association of Ontario – www.ehaontario.ca

Fibromyalgia London Group – www.fibrolondongroup.ca

Kitchener-Waterloo Fibromyalgia Support Group – www.kwfibromyalgia.webs.com

MEFM Societies of BC – www.mefm.bc.ca

Myalgic Encephalomyelitis Association of Ontario (MEAO) – www.meao.ca

National ME/FM Action Network – www.mefmaction.com

Nightingale Research Foundation, Canada – www.nightingale.ca

Nova Scotia Environmental Health Centre – www.cdha.nshealth.ca/environmental-health-centre

Waterloo Wellington Myalgic Encephalomyelitis Association – www.wwmea.ca

Denmark Denmark

Dansk ME Forening – me-foreningen.dk

Germany Germany

Fatigatio eV – www.fatigatio.de

Holland Holland

Het Alternatief – www.hetalternatief.org

International International

CINDpedia – www.cindpedia.org

International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis – www.iacfsme.org

Ireland Ireland

Irish ME/CFS Association – www.irishmecfs.org

Irish ME Trust – www.imet.ie

Italy Italy

Associazione Malati di CFS – www.associazionecfs.it

Norway Norway

Norges ME-forening – www.me-forening.no

Spain Spain

Liga SFC – www.ligasfc.org

Switzerland Switzerland

Verein CFS Schweiz – www.verein-me-cfs.ch

USA United States of America

CFIDS Association of America – www.cfids.org

CFIDS & Fibromyalgia Self-Help Program – www.cfidsselfhelp.org

Dr. Charles Lapp – Hunter-Hopkins Center – www.drlapp.net

Dr. Jacob Teitelbaum – www.endfatigue.com

Dr. Leonard Jason – DePaul University CFS Research – condor.depaul.edu/~ljason/cfs/

Environmental Working Group (EWG) – www.ewg.org

Health Rising – www.healthrising.org

International Association for CFS/ME – www.iacfsme.org

Invisible Diseases – www.invisiblediseases.com

MCS America – www.mcs-america.org

ME Action – www.meaction.net

ME-CFSKnowledgeCenter.com – www.cfsknowledgecenter.com

National CFIDS Foundation – www.ncf-net.org

National Fibromyalgia Association (NFA) – www.fmaware.org

Phoenix Rising – forums.phoenixrising.me

Prohealth Library – www.prohealth.com/library/index.cfm

Whittemore Peterson Institute for Neuro Immune Disease – www.wpinstitute.org

UK United Kingdom

Association of Young People with ME – www.ayme.org.uk

Dr Sarah Myhill MB BS – www.drmyhill.co.uk

Invest in ME UK – www.investinme.org

ME Association – www.meassociation.org.uk

ME Research UK – www.meresearch.org.uk

ME Support – www.mesupport.co.uk

Stone Bird – www.stonebird.co.uk

TYMES Trust (The Young ME Sufferers Trust) – www.tymestrust.org