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“Accelerating Collaborative Research” Webinar

Action CIND is hosting a free webinar with Linda Tannenbaum, Founder, CEO/President of the Open Medicine Foundation (www.omf.ngo) titled “Accelerating Collaborative Research”.

Join us for this webinar on August 21st at 3:00pm ET.  You can register here:

https://zoom.us/webinar/register/WN_qW8Grc6jSwu75JOWErBJKw

Linda has been on a world-wide tour to discuss their research and will join us to share details of their research with our audience.  Time will be allotted for Q&A.

The Open Medicine Foundation is spearheading chronic complex disease research that follows patterns of success and benefits from collaborating with leading scientists and clinicians from around the globe.  The current focus is on Myalgic Encephalomyelitis (ME) with the expectation that discoveries in this disease will bring answers to other diseases that share some of the symptoms (such as fibromyalgia and Lyme disease).

Our guest will provide updates on OMF’s current funded research projects:

  • Severely Ill Big Data Study
  • Metabolomics Validation Study
  • ME/CFS Collaborative Research Center at Stanford
  • ME/CFS Collaborative Research Center at Harvard
  • Uppsala University, Sweden
  • Others

If you struggle with ME or a chronic complex illness, you’ll want to tune in to this webinar.

We ask that you please let others know about this webinar.

Thank you

 

May 12th

2018 marks the 26th anniversary of May 12th International Awareness Day. As one of our education initiatives, we promote the day around the world and encourage people to participate in in the many activities that are planned. Additional information can be found on our website www.may12th.org.

Supporters

Join Action CIND as a supporter and receive additional benefits. The cost is $30 per year. Please complete this form and mail to our office. We are working on developing our benefit package. Currently we offer the following:

  • It is known that peer support can be very beneficial for individuals battling illness. Unfortunately for CIND patients, there are very few support groups available and many patients are not well enough to attend even if a group was available.  We are aware of an organization that provides an online self-help group. They are the CFIDS & Fibromyalgia Self Help Program (http://www.cfidsselfhelp.org/) . They have excellent programs you can take from home. They charge a nominal fee. To assist with the costs, Action CIND will make available to members in good standing, a bursary in the amount of $10 Canadian upon completion of one of their online programs.
  • Applying for CPP Disability and other coverages is a daunting task. Knowing what to do is a challenge. Our legal professionals have agreed to provide one pro-bono counselling session to any member in good standing that requires some support and direction. Often you can deal with the system on your own. Some do choose to hire professionals or legal aid due to the overwhelming nature of the task. Our lawyers will help you to understand the process so you can make informed choices.
  • For Ontario supporters, our Disability Consultant has experience reviewing legal bills for disability support cases for any evidence of double billing. This issue has recently been reported in the Toronto Star. Our consultant will review your initial contract and legal bills, providing the bill was issued less than 2 years ago. Should there be evidence of over billing, they will recommend a course of action.
  • Our Disability Consultant is a former lawyer and past chair of the Canada Pension Plan review tribunals for the greater Mississauga and Toronto area. She has considerable experience assisting clients successfully apply and obtain disability benefits.  As a Disability Consultant, she has offered to speak with Ontario supporters for 20 minutes free of charge, to understand your situation and assess your chances of getting accepted for these disability benefits. If you are interested in her services, she will offer a substantially discounted hourly rate to help guide you through the process of obtaining disability benefits. Certainly she can suggest things you can do to improve your chances of success.

Volunteer

Be part of our team! Volunteering allows you to directly participate in Action CIND program work. We are always looking for volunteers and can find you something that meets your needs. Please Contact US for more information.

Websites

The following list of websites are made available to help you find information about May 12th International Awareness Day, the illnesses or supporting organizations.

If you know of any items that should be added, please “Contact Us”.

Australia Australia

The Hummingbirds’ Foundation for M.E. (HFME) – www.hfme.org

Belgium Belgium

Belgium ME/CFS Association – www.me-cvs.be

R.E.D. Laboratories – www.redlabs.be

Canada Canada

Action CIND – www.actioncind.org

Association Québécoise de l’Encéphalomyélite Myalgique (AQEM) – www.aqem.org

Brockville M.E Association – www.brockvilleme-fm.ca

Environmental Health Association of Ontario – www.ehaontario.ca

Fibromyalgia London Group – www.fibrolondongroup.ca

Kitchener-Waterloo Fibromyalgia Support Group – www.kwfibromyalgia.webs.com

MEFM Societies of BC – www.mefm.bc.ca

Myalgic Encephalomyelitis Association of Ontario (MEAO) – www.meao.ca

National ME/FM Action Network – www.mefmaction.com

Nightingale Research Foundation, Canada – www.nightingale.ca

Nova Scotia Environmental Health Centre – www.cdha.nshealth.ca/environmental-health-centre

Waterloo Wellington Myalgic Encephalomyelitis Association – www.wwmea.ca

Denmark Denmark

Dansk ME Forening – me-foreningen.dk

Germany Germany

Fatigatio eV – www.fatigatio.de

Holland Holland

Het Alternatief – www.hetalternatief.org

International International

CINDpedia – www.cindpedia.org

International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis – www.iacfsme.org

Ireland Ireland

Irish ME/CFS Association – www.irishmecfs.org

Irish ME Trust – www.imet.ie

Italy Italy

Associazione Malati di CFS – www.associazionecfs.it

Norway Norway

Norges ME-forening – www.me-forening.no

Spain Spain

Liga SFC – www.ligasfc.org

Switzerland Switzerland

Verein CFS Schweiz – www.verein-me-cfs.ch

USA United States of America

CFIDS Association of America – www.cfids.org

CFIDS & Fibromyalgia Self-Help Program – www.cfidsselfhelp.org

Dr. Charles Lapp – Hunter-Hopkins Center – www.drlapp.net

Dr. Jacob Teitelbaum – www.endfatigue.com

Dr. Leonard Jason – DePaul University CFS Research – condor.depaul.edu/~ljason/cfs/

Environmental Working Group (EWG) – www.ewg.org

Health Rising – www.healthrising.org

International Association for CFS/ME – www.iacfsme.org

Invisible Diseases – www.invisiblediseases.com

MCS America – www.mcs-america.org

ME Action – www.meaction.net

ME-CFSKnowledgeCenter.com – www.cfsknowledgecenter.com

National CFIDS Foundation – www.ncf-net.org

National Fibromyalgia Association (NFA) – www.fmaware.org

Phoenix Rising – forums.phoenixrising.me

Prohealth Library – www.prohealth.com/library/index.cfm

Whittemore Peterson Institute for Neuro Immune Disease – www.wpinstitute.org

UK United Kingdom

Association of Young People with ME – www.ayme.org.uk

Dr Sarah Myhill MB BS – www.drmyhill.co.uk

Invest in ME UK – www.investinme.org

ME Association – www.meassociation.org.uk

ME Research UK – www.meresearch.org.uk

ME Support – www.mesupport.co.uk

Stone Bird – www.stonebird.co.uk

TYMES Trust (The Young ME Sufferers Trust) – www.tymestrust.org