Information

Various information is included on this page, including:

 

News

Join us for “Making Our Invisible Disabilities Visible” during Invisible Disabilities Week which runs October 18-24, 2020.  Action CIND and Fibromyalgia London Group are co-hosting a 3 part Zoom event on the afternoons of Oct 19th, 21st and 24th.  Please register for each day and see the attached images for the speakers and detailed schedules.

Part 1 Register at: https://us02web.zoom.us/webinar/register/WN_159MihhFSie8oYewheIT5A

Part 2 Register at: https://us02web.zoom.us/webinar/register/WN_AVzSNyh8ST2mcL3qlWjSNA

Part 3 Register at: https://us02web.zoom.us/webinar/register/WN_rEWJ7lMAQxmeyEBqpLqJYQ

Special guests will cover a range of topics for invisible illnesses Myalgic Encephalomyelitis (ME), Fibromyalgia (FM), Chronic Fatigue Syndrome (CFS) and Multiple Chemical Sensitivity/Environmental Sensitivities (MCS/ES).

We plan to record each day and there will be time for Q&A after each key speaker.

Hope you can attend.

Invisible Disabilities Week  

The detailed schedule is available here: Making Our Invisible Disabilities Visible – Oct 19, 20, 21 2020

 

Previous News

We are pleased to announce several new benefits for Action CIND contacts.   (e.g. volunteers, subscribers, newsletter subscribers, Action CIND support group members and donors) .

  •  Smarter technology for all! Lenovo, the #1 PC maker in the world, offers up to 35% off a rich portfolio of computing technologies that include high functioning, multi-use, cutting edge Laptops, Desktops, Smart Devices, Accessories, Tablets and more.  Subscribers will be granted access to a special website upon completion of an agreement to keep the site confidential.  If you’d like to become a subscriber, please see the details in our Subscriber section. Contact Action CIND at info@actioncind.org if you would like to take advantage of these great savings.
  • We  have also arranged to have a CAA  Corporate Membership , that is open to all Southern Ontario Action CIND contacts. For each person that joins, CAA will donate $5 to Action CIND.  See the attached Flyer for details and benefits.  ACTION CIND CAA flyer
  • We have also arranged with DELL Computers to get access to  award-winning desktops, laptops, tablets, servers, and accessories — so you can get exactly what you need to work the way you want. Dell is offering up to 45% off of Dell products. As with the Lenovo benefit, this is open to current and new subscribers.
  • Dr Eleanor Stein MD FRCP(C) has launched a new self management program called Pathways to Improvement.  Details of the  program can be found on her website www.eleanorsteinmd.ca.  It  is known that self management can be very beneficial for individuals with chronic illness.  To assist with the cost, Action CIND will make available to members in good standing, a bursary in the amount of $15 Canadian upon the completion of her program.

 

Lenovo Monthly Flyer

 

Contact Action CIND at info@actioncind.org if you’d like to explore these savings.

See the attached monthly flyer for details.

2020-04 Lenovo flyer

 

Webinars

The following webinars are scheduled for 2020 for education sessions on Life with ME/CFS.

Please register with the links provided below.

June 4 – https://zoom.us/webinar/register/WN_td5tJFdSQ0iGWHVL6LT6WA

 

May 12th

2020 marks the 28th anniversary of May 12th International Awareness Day. As one of our education initiatives, we promote the day around the world and encourage people to participate in in the many activities that are planned. Additional information can be found on our website www.may12th.org.

 

Subscribers

Join Action CIND as a subscriber and receive additional benefits. The cost is $30 per year. Please complete this form and mail to our office. We are working on developing our benefit package. Currently we offer the following:

  • It is known that peer support can be very beneficial for individuals battling illness. Unfortunately for CIND patients, there are very few support groups available and many patients are not well enough to attend even if a group was available.  We are aware of an organization that provides an online self-help group. They are the CFIDS & Fibromyalgia Self Help Program (http://www.cfidsselfhelp.org/) . They have excellent programs you can take from home. They charge a nominal fee. To assist with the costs, Action CIND will make available to members in good standing, a bursary in the amount of $10 Canadian upon completion of one of their online programs.
  • Applying for CPP Disability and other coverages is a daunting task. Knowing what to do is a challenge. Our legal professionals have agreed to provide one pro-bono counselling session to any member in good standing that requires some support and direction. Often you can deal with the system on your own. Some do choose to hire professionals or legal aid due to the overwhelming nature of the task. Our lawyers will help you to understand the process so you can make informed choices.
  • For Ontario subscribers, our Disability Consultant has experience reviewing legal bills for disability support cases for any evidence of double billing. This issue has recently been reported in the Toronto Star. Our consultant will review your initial contract and legal bills, providing the bill was issued less than 2 years ago. Should there be evidence of over billing, they will recommend a course of action.
  • Our Disability Consultant is a former lawyer and past chair of the Canada Pension Plan review tribunals for the greater Mississauga and Toronto area. She has considerable experience assisting clients successfully apply and obtain disability benefits.  As a Disability Consultant, she has offered to speak with Ontario subscribers for 20 minutes free of charge, to understand your situation and assess your chances of getting accepted for these disability benefits. If you are interested in her services, she will offer a substantially discounted hourly rate to help guide you through the process of obtaining disability benefits. Certainly she can suggest things you can do to improve your chances of success.
  •  Smarter technology for all! Lenovo, the #1 PC maker in the world, offers up to 35% off a rich portfolio of computing technologies that include high functioning, multi-use, cutting edge Laptops, Desktops, Smart Devices, Accessories, Tablets and more.  Subscribers will be granted access to a special website upon completion of an agreement to keep the site confidential.  If you’d like to become a subscriber, please see the details in our Subscriber section. Contact Action CIND at info@actioncind.org if you would like to take advantage of these great savings.
  • We  have also arranged to have a CAA  Corporate Membership , that is open to all Southern Ontario Action CIND contacts. For each person that joins, CAA will donate $5 to Action CIND.  See the attached Flyer for details and benefits.  ACTION CIND CAA flyer
  • We have also arranged with DELL Computers to get access to  award-winning desktops, laptops, tablets, servers, and accessories — so you can get exactly what you need to work the way you want. Dell is offering up to 45% off of Dell products. As with the Lenovo benefit, this is open to current and new subscribers.
  • Dr Eleanor Stein MD FRCP(C) has launched a new self management program called Pathways to Improvement.  Details of the  program can be found on her website www.eleanorsteinmd.ca.  It  is known that self management can be very beneficial for individuals with chronic illness.  To assist with the cost, Action CIND will make available to members in good standing, a bursary in the amount of $15 Canadian upon the completion of her program.

Volunteer

Be part of our team! Volunteering allows you to directly participate in Action CIND program work. We are always looking for volunteers and can find you something that meets your needs. Please Contact Us for more information.

Websites

The following list of websites are made available to help you find information about May 12th International Awareness Day, the illnesses or supporting organizations.

If you know of any items that should be added, please “Contact Us”.

Australia 

Australia

 

The Hummingbirds’ Foundation for M.E. (HFME) – www.hfme.org

Belgium 

Belgium

 

Belgium ME/CFS Association – www.me-cvs.be

R.E.D. Laboratories – www.redlabs.be

Canada 

Canada

 

Action CIND – www.actioncind.org

Association Québécoise de l’Encéphalomyélite Myalgique (AQEM) – www.aqem.org

Brockville M.E Association – www.brockvilleme-fm.ca

Environmental Health Association of Ontario – www.ehaontario.ca

Fibromyalgia London Group – www.fibrolondongroup.ca

Kitchener-Waterloo Fibromyalgia Support Group – www.kwfibromyalgia.webs.com

MEFM Societies of BC – www.mefm.bc.ca

ME Research – www.meresearch.info

Myalgic Encephalomyelitis Association of Ontario (MEAO) – www.meao.ca

National ME/FM Action Network – www.mefmaction.com

Nightingale Research Foundation, Canada – www.nightingale.ca

Nova Scotia Environmental Health Centre – www.cdha.nshealth.ca/environmental-health-centre

Waterloo Wellington Myalgic Encephalomyelitis Association – www.wwmea.ca

Denmark 

Denmark

 

Dansk ME Forening – me-foreningen.dk

Germany 

Germany

 

Fatigatio eV – www.fatigatio.de

Holland 

Holland

 

Het Alternatief – www.hetalternatief.org

International 

International

 

CINDpedia – www.cindpedia.org

International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis – www.iacfsme.org

Ireland 

Ireland

 

Irish ME/CFS Association – www.irishmecfs.org

Irish ME Trust – www.imet.ie

Italy 

Italy

 

Associazione Malati di CFS – www.associazionecfs.it

Norway 

Norway

 

Norges ME-forening – www.me-forening.no

Spain 

Spain

 

Liga SFC – www.ligasfc.org

Switzerland 

Switzerland

 

Verein CFS Schweiz – www.verein-me-cfs.ch

USA 

United States of America

 

CFIDS Association of America – www.cfids.org

CFIDS & Fibromyalgia Self-Help Program – www.cfidsselfhelp.org

Dr. Charles Lapp – Hunter-Hopkins Center – www.drlapp.net

Dr. Jacob Teitelbaum – www.endfatigue.com

Dr. Leonard Jason – DePaul University CFS Research – condor.depaul.edu/~ljason/cfs/

Environmental Working Group (EWG) – www.ewg.org

Health Rising – www.healthrising.org

International Association for CFS/ME – www.iacfsme.org

Invisible Diseases – www.invisiblediseases.com

MCS America – www.mcs-america.org

ME Action – www.meaction.net

ME-CFSKnowledgeCenter.com – www.cfsknowledgecenter.com

National CFIDS Foundation – www.ncf-net.org

National Fibromyalgia Association (NFA) – www.fmaware.org

Phoenix Rising – forums.phoenixrising.me

Prohealth Library – www.prohealth.com/library/index.cfm

Whittemore Peterson Institute for Neuro Immune Disease – www.wpinstitute.org

UK 

United Kingdom

 

Association of Young People with ME – www.ayme.org.uk

Dr Sarah Myhill MB BS – www.drmyhill.co.uk

Invest in ME UK – www.investinme.org

ME Association – www.meassociation.org.uk

ME Research UK – www.meresearch.org.uk

ME Support – www.mesupport.co.uk

Stone Bird – www.stonebird.co.uk

TYMES Trust (The Young ME Sufferers Trust) – www.tymestrust.org